Against Medical Advice pdf epub mobi txt 电子书 下载 2026
- to
- tested
- peopel
- fate
- chosen
- by
- be
- 医疗伦理
- 患者自主权
- 医疗决策
- 知情同意
- 医疗风险
- 法律责任
- 医疗纠纷
- 医学哲学
- 个人自由
- 健康权利
具体描述
Now available in trade paperback, this is the heart-rending drama of one family's courage, heartbreak, sacrifice, and triumph in confronting an agonizing medical condition, written by two master storytellers.
Cory Friedman woke up one morning when he was five years old with the uncontrollable urge to twitch his neck and his life was never the same again. From that day forward his life became a hell of uncontrollable tics, urges, and involuntary utterances. Eventually he is diagnosed with Tourette's Syndrome and Obsessive Compulsive disorder, and Cory embarks on an excruciating journey from specialist to specialist, enduring countless combinations of medications in wildly varying doses. Soon it becomes unclear what tics are symptoms of his disease and what are side effects of the drugs. The only certainty is that it kept getting worse. Despite his lack of control, Cory is aware of every embarrassing movement, and sensitive to every person's reaction to his often aggravating presence. Simply put: Cory Friedman's life is a living hell.
AGAINST MEDICAL ADVICE is the true story of one family's decades-long battle for survival in the face of extraordinary difficulties and a rigid medical establishment.
作者简介
目录信息
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It is a record of Cory and his family’s battle against medical odds. Cory is among the tiny group of people chosen by fate to test their faith. He was seized by Tourette's Syndrome at age five, and begin to tic and utter words uncontrollably. After trying ...
评分It is a record of Cory and his family’s battle against medical odds. Cory is among the tiny group of people chosen by fate to test their faith. He was seized by Tourette's Syndrome at age five, and begin to tic and utter words uncontrollably. After trying ...
评分It is a record of Cory and his family’s battle against medical odds. Cory is among the tiny group of people chosen by fate to test their faith. He was seized by Tourette's Syndrome at age five, and begin to tic and utter words uncontrollably. After trying ...
评分It is a record of Cory and his family’s battle against medical odds. Cory is among the tiny group of people chosen by fate to test their faith. He was seized by Tourette's Syndrome at age five, and begin to tic and utter words uncontrollably. After trying ...
评分It is a record of Cory and his family’s battle against medical odds. Cory is among the tiny group of people chosen by fate to test their faith. He was seized by Tourette's Syndrome at age five, and begin to tic and utter words uncontrollably. After trying ...
用户评价
这本书的结构设计堪称精妙，它不是那种线性叙事的老套路，而是采用了一种多线索、碎片化重组的方式，引导读者自行拼凑出全貌。这种叙事手法极具挑战性，但也带来了无与伦比的阅读体验。我感觉自己像一个侦探，在作者精心设计的迷宫中寻找线索，每一次看似不经意的细节，最终都汇集成一条清晰的脉络。语言风格上，作者似乎毫不吝啬地使用了各种文学技巧，时而跳跃，时而凝固，时而充满了口语化的直白，时而又回归到诗意的隐喻。这种风格的巨大跨度和多变性，使得阅读过程充满了惊喜和变数。它要求读者全身心地投入，去理解那些隐藏在字里行间的弦外之音和潜台词。读完某个章节后，我常常会回翻前文，去寻找那些当初被我忽略掉的关键信息点，每一次重读都会带来新的感悟，这大概就是一本真正好书的标志——它拥有多层次的解读空间，能够随着读者的心境变化而展现出不同的面貌。
评分这本书的节奏掌控如同一场精密的交响乐，每一个乐章都有其存在的价值和功能。在故事的中段，我一度因为情节的复杂性和人物关系的错综感而感到一丝迷失，但就在这种即将放弃的临界点上，作者突然抛出一个强有力的情节爆点，瞬间将所有的线索重新串联起来，那种豁然开朗的感觉，简直是无与伦比的阅读高潮。书中的对话设计尤为精彩，每一个字都仿佛经过千锤百炼，充满了张力和潜台词。人物之间的交流往往不是直接表达需求或情感，而是在试探、防御和周旋中传递信息，让人在体会对话内容的同时，更加关注对话发生的“方式”。这种对沟通本质的探讨，让这部作品具备了超越时空的讨论价值。它教会了我去倾听那些没有被说出来的话语，去解读沉默背后的重量。
评分从技术层面上讲，这本书的文本密度极高，信息量之大让人在读完最后一页时，有种意犹未尽却又心满意足的充实感。作者在描述场景和氛围时，寥寥数笔就能勾勒出栩栩如生的画面感，这种画面感并非依赖于华丽的辞藻堆砌，而是源于对细节的精准捕捉。例如，对某一特定时间点光线变化的描述，或是对某一特定气味的刻画，都能瞬间将我拉入故事的核心场景之中，感官体验非常丰富。这本书的后劲很足，放下书后，故事中的人物和场景依然在我的脑海中盘旋不去，我甚至开始在现实生活中寻找与书中主题相呼应的影子。它成功地做到了让虚构的故事，对真实世界产生持续的影响和启发，这才是文学作品最强大的力量所在，它不仅提供了逃离现实的窗口，更提供了重新审视现实的工具。
评分翻开这本书，我立刻被那种扑面而来的、近乎原始的叙事力量所震撼。作者的笔触极其细腻，仿佛是用手术刀般精准的语言，层层剥开社会机器运作下那些被精心包裹的温情假象。它讲述的不是一个简单的故事，更像是一面映照出我们集体无意识的镜子，那种感觉非常复杂，既有被揭示真相的快感，又伴随着对自身处境的深刻反思。书中对人物心理描摹的深度，尤其是在面对困境和道德抉择时的挣扎，令人感同身受。我常常需要停下来，深吸一口气，才能继续往下读。文字本身带着一种冷峻的、近乎哲学的思辨色彩，但同时又充满了饱满的人性光辉与挣扎。特别喜欢作者在构建冲突时所展现出的高超技巧，每一个转折都显得那么自然而然，却又出乎意料，仿佛是命运早已写好的剧本，只是此刻才被我们目睹。这本书的节奏掌控得极好，张弛有度，既有急促紧张的高潮段落，也有令人沉思的静默时刻，让人在阅读过程中始终保持着一种高度的专注。
评分真正让我感到震撼的是作者对于人性灰度的把握。在这部作品中，几乎找不到绝对的“好人”或“坏蛋”，每个人物都处于一个巨大的灰色地带，他们的动机复杂交织，善恶的界限模糊不清。作者并没有急于对任何行为做出简单的道德评判，而是将选择权交给了我们读者。我看到了一些我自身也可能做出的选择，也目睹了一些我绝对无法理解的极端行为，正是这种真实感，使得故事的代入感极强。书中对体制和规则的解构，也让人深思。它探讨了当个体意志与庞大系统发生碰撞时，究竟谁会屈服，或者说，系统本身是如何悄无声息地同化个体的。这种对社会肌理的深刻剖析，远超出了普通小说的范畴，更像是一部社会学观察报告，但它包裹在引人入胜的故事之下，使得严肃的主题变得易于消化和接受，这是一种非常高明的处理方式。
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